***** LET'S HELP LIL NUR *****

(Taken from sg.news.yahoo.com)

Four-year-old Adlea Ry’Kyla lies sleeping in a hospital bed too big for her, wrapped up in a bright pink Barbie blanket that covers the many tubes snaking from her wrist and the small needle puncture wounds that dot her skinny arms. She looks peaceful while she rests, but for the little girl, every minute ticking past is time lost – she has only weeks to live if she does not receive a human heart transplant. 

Adlea, affectionately called “Nur” by family and friends, is suffering from dilated cardiomyophaty, more commonly known as “swollen heart” syndrome, where her heart is too weak to pump blood around her body. As a result, her body traps fluids – leaving her stomach grossly bloated to almost half her size. 

“She can’t eat; she will vomit because of her foot infection,” said Nor’s mother, Norleen Osman, 33. “She is in agony, and every night she groans and cries.” 

According to Norleen, Nur’s foot infection, a gaping wound the size of a large biscuit, developed when the doctors “ran out of veins to inject on her arms.”  A simple injection turned into a full-blown infection and Nur had to undergo another surgery to prevent the wound from growing. 

“There’s no cure except for a heart transplant. And we can’t get that here.” said Norleen. She told Yahoo! Singapore that the only chance Nur has of surviving is to receive a paediatric heart transplant in either the United States or Europe, something their family cannot afford. 

Norleen and her four children depend on her security supervisor husband’s monthly pay of about $2,200. The cost of such an operation would set the family back by at least $500,000, a sum that they will never be able to raise on their own.
 “We try our best to cut down, we’ve applied for Medifund, but there’s not enough money.” said the housewife, whose family of six stays in a two-room rental flat in Ang Mo Kio. She added that they are already receiving financial assistance with Nor’s medical bills through the KKH Health Endowment Fund.
 During the course of the interview, she broke down several times as she described her daughter’s ordeal.“When she sees me crying, she will ask, what’s wrong, was daddy bad to you, why are you crying?” said Norleen, who has been by her daughters’ side 24/7 since her hospitalisation last week. “She’s so strong, we have to hold on and believe that she will live.” Nur has been in and out of the hospital since she was just five months old and diagnosed with myocarditis, or heart inflammation. She got better, but when she was nearly two years old, a high fever caused another heart infection.
Because of her weak health, she has never had a chance to go to school or make friends, but spends her days resting at home or singing and dancing to Bollywood movies and Barney videos. 
“She used to sing and dance and laugh all the time, but now she has stopped.” said Norleen. Nur's doctor, Associate Professor and Senior Consultant at KKH's Department of Paediatric Subspecialties Dr Wong Keng Yean confirmed that there is no heart transplant programme in Singapore for children as young as Adlea. 

"Adlea suffers from .. an inflammation of the heart muscle commonly due to a viral infection of the heart," said Dr Wong. "Patients are at risk of suffering severe heart failure and early death or developing chronic heart failure."

Norleen has written in to several hospitals in the United States, including the Joe DiMaggio Children’s Hospital in Hollywood. She said the family is now just waiting for a positive response so they can get her the care she needs as soon as possible. 

“My fear is that, when they reply saying yes, my daughter will be too weak to even travel over.” she said. Norleen is appealing to the public for financial help for her daughter.  
“If she can fight to live, I will also fight and be strong for her.” she said. 

Currently, her close friend, photographer Rima McDonald, is handling all donations at her Little Nur’s Heart Fund site, through which they have raised $10,000 as of last Sunday, and hope to raise $200,000 by the 8th of June.
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Let's give lil Nur hope n better future. Do u feel ur heart crying?? A lump in ur throat?? Well it did to me. I've played my part. What abt u? I believe Lil Nur didnt ask fr a huge amount. Just a little frm everyone will definitely help her greatly. 
I've dont know her parents or herself nor did I ever meet her b4. But I cant bear to see a small child in so much agony. I dont know abt all of u.... but just imagine if we are in Mdm Norleen's shoes... Wat wud u do..?? How wud u feel? Wat will u think of...?? Just a little contribution goes a long way.. Imagine if 1 person willing to donate $10, if there's 1000 people = U've already got $10000. Each person plays a part... we will definitely achieve the GOAL amount. LIL NUR DOESNT HAVE MUCH TIME. SO ALL PEOPLE WITH A HEART, WHAT R U WAITING FOR? 

** Im just playing my part as a human being. ** Cheers everyone... (wink wink)

~~ The best gifts in the world as a mom ~~

Astagfirullah.. hah kan dah teristigfar. Hahaha. Aper tidaknyer, dah ages tak update. Bila bab nak update, masa takder. Bila ader time nak update, takder pulak ilham nie dtg. Definitely bila nak update something here mesti ader ideas kan. Kalau tak buang karen jer type2 berjeler tapi takder citer. Hahahaha. Lots of stuffs dah happen and one of them is I've just lost my mom-in-law. Yup... she's gone :(. She was warded sbb sesak nafas at Hospital Jempol but her sickness get worse n have to be transfered to Hospital Kuala Pilah. After warded fr a day, she went into coma and exactly 12hrs later she passed away. Reason: Chronic Kidney Complications. Ya lah, org dah tua and furthermore she dah kene stroke fr abt 6 yrs. She suffered a lot then. Kesian dia when teringat balik how she sat and dragged herself (stroke to her legs) to the bathroom. Den once done, she called for me or hub to lift her up frm the bathroom n then she dragged herself again to the room. Really really kesian. Kita sedekahkan alfateha pd dia lah... Mak mertua ku Zainab binte Ariffin.
K kita put that story aside, dari mula sampai now asik post citer jer kan. Gambar2 takder. Mcm boring kan. I myself tgk pon boring :P. And slalu asik citer2 pasal anak2 tapi gambarnyer takder. Sekadar gambar kat atas2 tu jer lah. Tgk hari2 pon naik boring. So kat sini, i post a few picts of them lah k. Enjoyz....

Nie my eldest girl, Dinah Diyanah@ Diyan when she was 3 months old.

Nie lak my son, Muhammad Danish Mirza @ Danish when he was 2 wks old.

And nie my youngest gurl, Qistina Qaisarah @ Qis when she was 2 days old.

Nie lah gambar latest masa raya tahun lepas. Dah besar panjang suma. Hehehehe. 

Dinah is 13 this yr, Danish is 9 and Qis is 1yr 5 mths currently.

Amcam cute tak suma. keh keh keh.. mestilah cute kan sbb mummynyer cute :P. K lah, kita outs jap ek. Sbb dah ujan lah. Paham2 ajer lah kalau dah ujan, dah guruh, nanti sure ader petir. Takder modem tu jadi mangsa petir tu lagi. Hahaha... See ya amigos!! ;) ;) ;)